I am soooo excited to share something that is truly important with you guys today! I mean painting and crap is semi important but this is life changing important.
Meet my girl Lindsay.
Gah! Isn’t she just the cutest? Lindsay is one of my sister Amy’s really great friends.
Amy and Lindsay after Lindsay’s Special Olympics softball game
I have had the chance to meet Miss Lindsay and she is the sweetest thing in the entire world. Lindsay is extra special too. She has a syndrome called Prader-Willies.
It is actually really interesting, its a lifelong condition complicated by developmental delays, low muscle tone, mental retardation, and behavioral issues.
PWS is a 2 phase genetic disorder that a huge (like 70%) of the people that it effects aren’t aware of. Phase one is called “Failure to thrive” When a PWS child is born they have an extremely hard time gaining weight. They have little to no appetite and usually when a PWS infant dies it is because of starvation.
Then phase 2 hits around ages 2-4. It is titled “Thriving too well” Basically the feeling of being hungry never goes away. Prader-Willie children have an abnormal interest in food and also an extremely low metabolism which results in obesity and all of the complications that come from that.
Lindsay and her brother Stephen
So why am I telling you all of this? Because we have a chance to help! They are part of the Vivint Gives Back Project and with everyone’s vote can win $250,000 for the Prader-Willies Syndrome Association! That is AMAZING!
So please take 30 seconds out of your life to click over and vote for the UPWSA. (You will need a facebook account to vote.) If you are logged in to Facebook just scroll down to the orange button and click vote. That’s it.
You can vote once a day from now until August. They have set a goal to have 5,000 votes the first week of the contest so share share share!!
And if you would like more info on Prader-Willies you can click over to their site!
Voted and shared. Thanks for such a wonderful post.
Hi Mandi, I had never heard of this condition, so thank you for enlightening me. I have added this post to my “Changing the World One Blog at a Time” Linky Party (here’s the link:) https://michellelunt.blogspot.com/2011/02/200-followers-wahoo-celebration-time.html
Warmly, Michelle
oh my gosh. i used to do personal training and trained a client for a long time who had the same syndrome. she was the sweetest thing ever, and when iw as pregnant for sawyer, she made me the most beautiful picture for the nursery in her art class. it is now in the playroom and i treasure it. she moved and i also moved, so i have lost touch with her, but i love to look at the picture and think of her and how she touched my life.
going to vote.
Voted! Thanks for raising awareness!!!!
Thanks Mandi
It’s amazing and so are you- Can’t say enough thanks for spreading awareness.
Delores
I’ve never heard of that syndrome. Thanks for the heads up. I voted!
I haven’t heard of pws. Thanks for sharing!
I voted too. 😉
Voted!!! Woot Woot! Hope they win…I will spread the word.
That Adorable Lindsay Baker is my niece, she has taught our family some of the most amazing lessons in life. Please vote, once every day and help all the amazing children who have this condition.
Thank you Vintage Revival – this was a Great Link!!!!
Thanx, Rochelle
What a sweet post. Thanks so much for sharing that information. I don’t have a facebook, so I can’t vote, but my thoughts are with Lindsay. She is clearly a very happy gal. I’m sure she is very lucky to have your sister as a friend….
Take care,
Lisa
oh my goodness! I just found your blog the other day and started browsing through your posts and I came across this one! I cried when I read it.. my youngest sister has Pradar willie syndrome and it was just awesome to read this, thank you so much. I live 6000k away from my sister right now, and shes a huge inspiration for me and my life, she just has the best out look and the best personality ive ever come across. thank you for sharing this.